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Question 1 of 67
1. Question
Use of The Shared Table techniques
We’re interested in the techniques you are already using with your loved one. For the last week, please rate how often you:
Advised what meal will be well in advance
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Question 2 of 67
2. Question
Advised of meal times well in advance
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Question 3 of 67
3. Question
Affirmed the physical benefits of nutrition/nourishment
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Question 4 of 67
4. Question
Affirmed the physical benefits of nutrition/nourishment
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Question 5 of 67
5. Question
Created a pleasant environment at meal time
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Question 6 of 67
6. Question
Distracted during the meal (eg. word games)
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Question 7 of 67
7. Question
Distracted post meal time (eg. watching a movie)
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Question 8 of 67
8. Question
Referred to the eating disorder as separate to loved one
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Question 9 of 67
9. Question
Reminded about reasons to get better
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Question 10 of 67
10. Question
Repeated back what your loved one said in your own words
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Question 11 of 67
11. Question
Talked about non-eating disorder topics during the meal
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Question 12 of 67
12. Question
Validated their feelings (eg. I can see this is hard)
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Question 13 of 67
13. Question
We’re interested in the techniques you are already using with your loved one.
Sort the following techniques from most to least important:
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Talked about non-eating disorder topics during the meal
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Affirmed the physical benefits of nutrition/nourishment
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Advised what meal will be well in advance
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Created a pleasant environment at meal time
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Advised of meal times well in advance
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Reminded about reasons to get better
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Broke down meal time into small steps
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Referred to the eating disorder as a separate entity
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Distracted during the meal (e.g. word games)
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Validated their feelings (e.g. I can see this is hard)
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Repeated back what your loved one said in your own words
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Distracted post meal time (e.g. watching a movie)
View Answers:
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Question 14 of 67
14. Question
We would like to learn more about the costs that you have experienced in assisting your relative or friend with an eating disorder to have their meals in the last week:
Did you take time off from paid work to assist them with their meals?
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Question 15 of 67
15. Question
If ‘yes’ can you tell us, in hours and minutes, how much time in the last week this was?
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hours and minutes
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Question 16 of 67
16. Question
Did you have to take time off from leisure or other activities you normally do like housework, shopping, studying, caring for other people to assist your relative or friend with their meals?
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Question 17 of 67
17. Question
If ‘yes’, can you please tell us in hours and minutes, how much time in the last week this was:
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hours and minutes
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Question 18 of 67
18. Question
Eating Disorder Symptom Impact Scale
Please note that this measure contains some outdated terminology. Specifically, it refers to the individual with an eating disorder using the term ‘sufferer’ and uses gendered language (s/he pronouns only). EDQ and the other groups associated with this study do not endorse this terminology; however, as it is a standardised measure, we are unable to alter its wording.
The following questions contain a number of statements that commonly apply to persons who care for relatives or friends with an eating disorder. Please read each one and decide how often it has applied to you over the past one month. It is best not to spend too long on any one statement. Your first reaction will usually provide the best answer.
During the past month how often have you thought about:
How your friends/relatives have stopped visiting: -
Question 19 of 67
19. Question
Losing your friends
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Question 20 of 67
20. Question
Feeling unable to go out for evenings, weekends or on holiday
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Question 21 of 67
21. Question
Canceling or refusing plans to see friends or relatives
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Question 22 of 67
22. Question
Feeling that I should have noticed it before it became so bad
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Question 23 of 67
23. Question
Feeling that I have let him/her down
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Question 24 of 67
24. Question
Feeling that there could have been something that I should have done
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Question 25 of 67
25. Question
Thinking that perhaps I wasn’t strict enough
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Question 26 of 67
26. Question
Thinking about where I went wrong
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Question 27 of 67
27. Question
Physically and/or verbally aggressive
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Question 28 of 67
28. Question
Controlling/manipulative
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Question 29 of 67
29. Question
Out of control temper
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Question 30 of 67
30. Question
When the sufferer was living with you at home during the past month, how often:(if the sufferer was not living at home with you during the past month, please refer to the last time she/he was living at home)
Did you experience difficulties preparing meals (i.e. making separate meals for family members, not having correct ingredients)?
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Question 31 of 67
31. Question
Were there arguments or tension during mealtimes?
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Question 32 of 67
32. Question
Were there arguments with other family members about how to handle mealtimes?
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Question 33 of 67
33. Question
Did food disappear from the cupboards?
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Question 34 of 67
34. Question
Did you spend long periods of time shopping for food?
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Question 35 of 67
35. Question
Did you have difficulties with blocked drains, plumbing?
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Question 36 of 67
36. Question
Were there bad smells and hygiene in the bathroom?
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Question 37 of 67
37. Question
Did you have to turn up the heat due to her/him feeling cold?
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Question 38 of 67
38. Question
Did you check on her/him to ensure that she/he was ok?
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Question 39 of 67
39. Question
Did you notice or think about how the illness was effecting her/him mentally?
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Question 40 of 67
40. Question
Did you notice or think about how the illness was effecting him/her physically? (ie. see her/him fall, faint, struggle up the stairs)?
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Question 41 of 67
41. Question
The Caregiver Skills (CASK)
Please note that this measure contains some outdated terminology. Specifically, it refers to the individual with an eating disorder using gendered language (s/he pronouns only). EDQ and the other groups associated with this study do not endorse this terminology; however, as it is a standardised measure, we are unable to alter its wording.
We are interested in your thoughts on some areas of caregiving. Please be as frank and honest as you can.
The statements below describe situations that are commonly associated with eating disorders. For each situation please rate how confident you are that you could respond in the way described.
Rate your degree of confidence from 0 to 100 using the scale given below.
0 10 20 30 40 50 60 70 80 90 100
Almost never Occasionally Frequently Almost Always
For example, a rating of 100 means that you are absolutely, 100% confident that you could perform the activity whenever you wished. For each scenario, please select the number that you feel best reflects your confidence. You can choose any score between 0 and 100 (10, 20, 30, etc.)
Please make all your ratings based on what you could do THIS WEEK as the person you are NOW rather than on the person you used to be or the person you would like to be. This is very important.
If you feel some of the questions aren’t applicable to you, try to rate how confident you would be should the situation arise. The blank spaces refer to your loved one with an eating disorder. You do not need to fill in the gaps.
How confident are you that you can…
Keep doing the things that you enjoy whilst caring for____________?
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Question 42 of 67
42. Question
Discuss and explain your own feelings about the eating disorder openly with __________?
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Question 43 of 67
43. Question
Discuss the eating disorder openly with all other immediate family members involved?
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Question 44 of 67
44. Question
Be understanding towards your loved one, even when you are angry or frustrated with them?
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Question 45 of 67
45. Question
Avoid getting drawn into arguments about the eating disorder with _________?
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Question 46 of 67
46. Question
Be calm when dealing with difficult behaviours associated with the eating disorder?
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Question 47 of 67
47. Question
Take some time for yourself when you need a break?
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Question 48 of 67
48. Question
Avoid getting caught in repetitive conversations with _________ about food and eating?
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Question 49 of 67
49. Question
Talk and listen with ____________, about difficult and complex emotions that s/he is feeling?
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Question 50 of 67
50. Question
Be reassured by even the smallest signs of improvement?
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Question 51 of 67
51. Question
Keep hope that your loved one with an eating disorder will recover?
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Question 52 of 67
52. Question
Step back and trust that your loved one will cope with day to day challenges by themselves?
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Question 53 of 67
53. Question
Agree boundaries, plans or household rules in collaboration with your loved with an eating disorder?
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Question 54 of 67
54. Question
Uphold boundaries/rules consistently in a compassionate tone, even when ________ is arguing with you?
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Question 55 of 67
55. Question
Control the urge to argue against the eating disorder behaviours, even though you believe your argument to be logical?
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Question 56 of 67
56. Question
Control the urge to keep enquiring or checking on _______ ‘s behaviour even when you are very worried?
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Question 57 of 67
57. Question
Praise change or attempts at change by _______ even if the effects/results were less than you were hoping for?
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Question 58 of 67
58. Question
Resist constantly reminding/asking about agreed behaviour targets?
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Question 59 of 67
59. Question
Keep your eye on ________’s overall progress/the bigger picture?
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Question 60 of 67
60. Question
Resist relying solely on weight as a marker of how s/he is doing?
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Question 61 of 67
61. Question
Separate ___________ as a person from the illness?
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Question 62 of 67
62. Question
Reflect and understand the effect of your behaviour on __________?
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Question 63 of 67
63. Question
Accept that the eating disorder is not your fault?
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Question 64 of 67
64. Question
Accept that the one cause or trigger for the eating disorder may not be the solution to recovery?
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Question 65 of 67
65. Question
Find time to spend with other members of the family?
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Question 66 of 67
66. Question
Manage your anxiety levels so that you don’t feel overwhelmed?
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Question 67 of 67
67. Question
Is there any additional input or feedback you would like to provide that you have not already?
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This response will be awarded full points automatically, but it can be reviewed and adjusted after submission.
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